Research Article

The Lived Experiences of Thriving Family Caregivers of Persons with Autism Spectrum Disorder

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Psych Educ Multidisc J, 2022, 3 (1), 41-51, DOI: https://doi.org/10.5281/zenodo.6819669, ISSN 2822-4353
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Abstract

Autism spectrum disorder is a lifelong disease, and because of its nature, the adverse effects on the quality of life of families and patients are evident. The consequences of the disease can be far-reaching for their families, who often end up supporting and caring for them. Hence, this study would dig in exploring the lived experiences of thriving family caregivers of persons with autism spectrum disorder. The interpretative phenomenological analysis approach was utilized by the researcher to make sense of their lived experiences. The results identified four major themes: facing diagnosis challenges, handling stress of caregiving, holding on to faith and growing holistically. In addition to the major themes are the eight subthemes: having limited knowledge about ASD, handling physical stress, handling emotional stress, gaining confidence, finding meaning through spirituality, broadening their sense of understanding, accepting their family members’ condition, and gaining a greater sense of fulfillment. With the challenges and stress of caregiving, it was revealed that most family caregivers cope by holding on to their faith which allowed them to see things from a different perspective. Rather than dwelling on the stress of caregiving, they focused on their faith that they are in this situation for a reason. It can be concluded that even though family caregivers face various challenges in caregiving their family members with ASD, they still can thrive and have a meaningful life.

Keywords autism spectrum disorder family caregivers interpretative phenomenological analysis lived experiences thriving family caregivers
Author 1

The team behind this paper

1 author, 1 institution.

This paper Holy Angel University — Philippines Holy Angel University 1 author Ma. Rosario Nepomuceno — corresponding author MN Ma. Rosario Nepomuceno ✉

Readership

898 reads over 33 months.

February 2024 October 2026

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This article is token #410 of SciMatic Articles (ERC-1155): 1,000,000 tokens, minted once, never more. The chain also stores a fingerprint (SHA-256) of the article's record, so anyone can check that it has not been altered.

HolderWalletTokens
SciMatic 0xc35709…277732 100,000 (10%)
Ma. Rosario Nepomuceno 0x43A4b2…274B70 900,000 (90%)
Content hash 0x450511e2be89a129ea543c30161d91680c1cfe905f4d705c125b499f4e3504c8

Bibliographic Information

Ma. Rosario Nepomuceno (2022). The Lived Experiences of Thriving Family Caregivers of Persons with Autism Spectrum Disorder, Psychology and Education: A Multidisciplinary Journal, 3(1): 41-51
Bibtex Citation
@article{ma._rosario_nepomuceno2022pemj,
author = {Ma. Rosario Nepomuceno},
title = {The Lived Experiences of Thriving Family Caregivers of Persons with Autism Spectrum Disorder},
journal = {Psychology and Education: A Multidisciplinary Journal},
year = {2022},
volume = {3},
number = {1},
pages = {41-51},
doi = {10.5281/zenodo.6819669},
url = {https://scimatic.org/show_manuscript/410}
}
APA Citation
Nepomuceno, M.R., (2022). The Lived Experiences of Thriving Family Caregivers of Persons with Autism Spectrum Disorder. Psychology and Education: A Multidisciplinary Journal, 3(1), 41-51. https://doi.org/10.5281/zenodo.6819669

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