Abstract
This study investigated the lived experiences of families raising a child diagnosed with Autism Spectrum Disorder (ASD). ASD is a complex neurodevelopmental condition characterized by a spectrum of challenges in social communication and interaction, restricted or repetitive patterns of behavior, interests, or activities. Individuals with ASD exhibit a wide range of symptoms and require varying levels of support throughout their lives. These may include difficulties with social interaction, communication, and sensory processing, as well as unique strengths and talents. ASD is a lifelong condition that affects individuals differently, impacting their social, emotional, and cognitive development. Families play a crucial role in the lives of children with ASD, providing essential care, support, and guidance. Specifically, it explored: 1) the challenges encountered by family members, 2) their coping mechanisms, and 3) the significance of each family member's role in the child's development. Guided by Urie Bronfenbrenner's Ecological Systems Theory, the study employed a qualitative case study approach, involving in-depth interviews with ten significant others (parents, grandparents, siblings, etc.) of a 6-year-old child with ASD. Thematic analysis revealed key challenges, including communication and social interaction difficulties, and the emotional impact on families, such as anxiety and stress. Coping mechanisms included seeking professional help, establishing routines, and utilizing faith as a source of strength. Family members played crucial roles as advocates, providers of emotional support, and implementers of positive reinforcement strategies. The findings underscore the multifaceted nature of family experiences with ASD and emphasize the critical need for comprehensive support systems that address the diverse needs of individuals with ASD and their families.
