Standard set of patient-reported outcomes for personality disorder - Quality of Life Research

Standard set of patient-reported outcomes for personality disorder - Quality of Life Research

Valentina Prevolnik Rupel;Beth Jagger;Luz Sousa Fialho;Lisa-Marie Chadderton;Timea Gintner;Anroud Arntz;Åse-Line Baltzersen;Julia Blazdell;Jan van Busschbach;Marika Cencelli;Andrew Chanen;Charlotte Delvaux;Fieke van Gorp;Lucie Langford;Brian McKenna;Paul Moran;Karla Pacheco;Carla Sharp;Wei Wang;Karen Wright;Mike J. Crawford;Valentina Prevolnik Rupel;Beth Jagger;Luz Sousa Fialho;Lisa-Marie Chadderton;Timea Gintner;Anroud Arntz;Åse-Line Baltzersen;Julia Blazdell;Jan van Busschbach;Marika Cencelli;Andrew Chanen;Charlotte Delvaux;Fieke van Gorp;Lucie Langford;Brian McKenna;Paul Moran;Karla Pacheco;Carla Sharp;Wei Wang;Karen Wright;Mike J. Crawford;
quality of life research 2021 pp. 1-16
299
rupel2021qualitystandard

Abstract

Purpose The purpose of the article is to present standard set of outcomes for people with personality disorder (PD), in order to facilitate patient outcome measurement worldwide. Methods The International Consortium for Health Outcomes Measurement (ICHOM) gathered a multidisciplinary international working group, consisting of 16 experts, including clinicians, nurses, psychologists, methodologists and patient representatives, to develop a standard set of outcome measures for people with PD. The Delphi method was used to reach consensus on the scope of the set, outcome domains, outcome measures, case-mix variables and time points for measuring outcomes in service users. For each phase, a project team prepared materials based on systematic literature reviews and consultations with experts. Results The working group decided to include PD, as defined by International Classification of Diseases 11th revision (ICD-11). Eleven core outcomes and three optional outcomes across four health domains (mental health, behaviour, functioning and recovery) were defined as those relevant for people with PD. Validated measures for the selected outcomes were selected, some covering more than one outcome. Case-mix variables were aligned to other ICHOM mental health standard sets and consisted of demographic factors and those related to the treatment that people received. The group recommended that most outcomes are measured at baseline and annually. Conclusion The international minimum standard set of outcomes has the potential to improve clinical decision making through systematic measurement and comparability. This will be key in improving the standard of health care for people with PD across the world.

Citation

ID: 267637
Ref Key: rupel2021qualitystandard
Use this key to autocite in SciMatic or Thesis Manager

References

Blockchain Verification

Account:
NFT Contract Address:
0x95644003c57E6F55A65596E3D9Eac6813e3566dA
Article ID:
267637
Unique Identifier:
doi:10.1007/s11136-021-02870-w
Network:
Scimatic Chain (ID: 481)
Loading...
Blockchain Readiness Checklist
Authors
Abstract
Journal Name
Year
Title
5/5
Creates 1,000,000 NFT tokens for this article
Token Features:
  • ERC-1155 Standard NFT
  • 1 Million Supply per Article
  • Transferable via MetaMask
  • Permanent Blockchain Record
Blockchain QR Code
Scan with Saymatik Web3.0 Wallet

Saymatik Web3.0 Wallet