The Challenge Coping and Resilience of the Families of School-Aged Children with Autism Spectrum Disorder in China: A Qualitative Study.

The Challenge Coping and Resilience of the Families of School-Aged Children with Autism Spectrum Disorder in China: A Qualitative Study.

Han, Fengying; Gao, Xin
Behavioral sciences (Basel, Switzerland) 2025 Vol. 15
47
han2025the

Abstract

This study aimed to explore the dynamic adjustment mechanisms of the families of school-aged children with autism spectrum disorder (ASD) in China in coping with challenges, focusing on the roles of belief systems, organizational processes, and communication strategies, as well as the influence of the China-specific cultural and policy contexts. Based on Walsh's family resilience theory, a qualitative research methodology was used, with semi-structured interviews to collect experience data from these families, and thematic analysis was used to summarize the main challenges and coping processes. The study found that the families mainly faced the following challenges: difficulties in family care, parenting burnout, educational plights, and inadequate community support systems. Regarding belief systems, families enhanced their resilience through emotional acceptance and redefined expectations; regarding organizational processes, families optimized their internal operations through the flexible division of labor and decision-making patterns and actively mobilized external resources; and, regarding communication, reflection and sharing fostered emotional connection within the family, while compromise and patience enhanced the ability to integrate external resources. In addition, the traditional Chinese culture and inadequate policy support had a significant impact on the formation of family resilience. This study validates the cross-cultural applicability of family resilience theory and suggests enhancing family resilience through psychological support, policy optimization, and social advocacy.

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